Psychological health and coping in adults with skeletal dysplasia

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Project leader

Svein Fredwall, M.D., PhD

Abstract

The purpose of this study is to develop and evaluate the feasibility of a video conference-based group intervention for adults with a skeletal dysplasia and symptoms of depression. The participants were recruited from an ongoing international study on health-related quality of life in adults with skeletal dysplasia (The HRQOL study). Preliminary results from the HRQOL-study showed a high prevalence of depressive symptoms. Additionally, several participants described difficulties in accessing help for psychosocial challenges within the regular healthcare system.

A selection of participants from the HRQOL-study, with clinically relevant depression symptoms, were invited to participate in a digital group intervention. The intervention was based on accept and commitment therapy. A specific manual, a workbook and PowerPoints for each session were developed. The goal was to enhance participants' coping skills in living with skeletal dysplasia.

We have completed two groups. The participants received 12 hours of the intervention, participated in a qualitative interview and completed questionnaires regarding psychological distress, acceptance, pain, and health related quality of life. If the results show the intervention to be feasible and effective, it can be further developed for participants with other diagnoses.

Anne-Mette Bredahl, psychologist, specialist in clinical health psychology and community psychology, PhD

Elisabeth Fagereng, psychologist

Taran Youssefian Blakstvedt, psychologist

Ethical approvals

REK nr 479676

SIKT reference number 182913

Funding

Time period

Spring 2022- spring 2024