Adults with Achondroplasia and their experience with physical activity

Project leader

Anne-Mette Bredahl, clinical psychologist PhD, TRS National Resource Centre for Rare Disorders  

Abstract 

The purpose of the study is to explore how persons with Achondroplasia experience participation in physical activity. Research concerning this topic is scarce. Achondroplasia is a rare disorder which result in short stature as well as various health problems.

In society today physical activity is regarded as important to prevent health problems. This discourse is prevalent both from a politically and a healthcare perspective but can be understood in different ways. How does adults with Achondroplasia experience their participation being influenced by different perspectives on physical activity, health, body and identity? How does different structures in society, such as power, finance and accessibility, affect their experience of physical activities in different arenas?  

Data are produced through individual in-depth-interviews with 10 adults. Research concerning the opportunities and challenges persons with Achondroplasia experience is important. It can provide knowledge relevant to others with Achondroplasia, teachers, coaches, health professionals and others. The research can potentially have a transfer value to other types of short stature, rare disorders and other types of disability.  

The study is planned in cooperation with the Norwegian association for persons with short stature (NIK) and two user representatives with Achondroplasia are contributing in the research process.  

The 10 interviews have been conducted and is being analysed, and will form as the basis for the second round of interviews. This will also provide a chance to understand more about the influence of the pandemic on participation in physical activity and give more insight and in-dept knowledge about the topics explored in the study.

Research group members 

Ellen Berg, PhD, associate professor, Department of Teacher Education and Outdoor Studies Norwegian School of Sport Sciences

Ethical approvals

REK application number: 2017/833 B

SIKT application number: 2017/8504

Funding

TRS National Resource Centre for Rare Disorders 

Time period

Start: Autum 2017. Planned to finish: autumn 2026